Finding treatment options for endometriosis
Endometriosis isn't easy to live with.
"I literally could not get out of bed sometimes, the last time I passed out before I had surgery, I hit my front teeth and my front right tooth here is actually a cap because I actually hit it," Stephanie Burgess, an endometriosis patient, said.
That's why Burgess and Madeline Pain wanted solutions, and fast, but with endometriosis that's not always how it works.
"It's a cancer that doesn't kill because it just, there is no cure for it and it just gets worse and worse and worse," Pain said.
These women say one of the issues is that there's a general misunderstanding of this disease.
"The more I looked into the more I realized wow, this is way more than just bad cramps, this is an actual disease," Pain said.
Which means finding a solution can take a long time. Both of these women ended up doing excision surgery.
"The night before I just remember not being able to sleep because it was just that feeling of, am I going to be validated, is this all in my head? Because that's what you've been told for so long," Pain said.
Both Pain and Burgess finally got the relief they needed.
"He said I never doubted your pain for a minute, but now you have proof," Burgess said. "You have proof of why you were in so much pain and now we can do something about it and here's what we're going to do. When you have a doctor tell you they believe you, and they're going to help you, you can't imagine the type of relief."
They say if you're a woman with endometriosis, you need to do your research.
"If you go to a doctor, a provider here, and you're not getting answers please keep searching, keep looking," Burgess said.