Some people in the Grand Valley community are looking to celebrate the life of a little girl. Their efforts are to fund research for other children effected by heart defects.
Addison Scott was born with a Hypoplasic left heart. It is a heart defect that took her life at just 3 years old. Now friends and supporters are putting together a 5K in her memory.
Carolyn Berry is a family friend of the Scotts and one of the main organizers for “Addi's Cupcake Trot".
“Addi’s Cupcake trot is a 5K fundraiser and celebration for Addi on May 5th to raise awareness for her condition.
Carolyn Berry said she is helping out because she was touched by Addi, "It didn't matter if you met her for 5 minutes or if you knew for her entire life, she changed your life."
Berry hopes there will be a big turn out at the run, "I'm hoping around 200... the more the better. the more the better."
All the money raised goes towards research of Hypoplastic Left Heart at the Denver Children's Heart Institute and Dr. Miaymoto’s tissue bank.
This defect impacts about 1 in 5,000 babies born and can only be helped through open heart surgeries or a heart transplant.
Berry said she heard others in the Grand Valley are dealing with the same defect, "Even in this area, there are other kiddos who are preffing to fight some of the same battles."
Berry hopes that this 5K will be a chance to bring families together and remember life as she remembers Addi's, "Just watching her with the kids, and seeing them play and laugh… just wasn't enough time. I wish I could have known her longer. I'm grateful for the time I got because she truly made a difference in my life."
For more information about how to register for the 5K, visit www.addiscupcaketrot.com.
To learn more about Addison and her journey, visit Facebook and search “A Heart For Addison”.
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